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PPT-#EHMA2020 Why the presentation of outcome information is indispensable in making treatment PowerPoint Presentation

Myeloma 74 Mirjam Garvelink PhD mgarvelinkantoniusziekenhuisnl MMGarvelink EHMA2020 Mr K has MM MMGarvelink EHMA2020 Shared Decision Making SDM SDM MMGarvelink

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#EHMA2020 Why the presentation of outcome information is indispensable in making treatment: Transcript

Slide1

#EHMA2020

Why the presentation of outcome information is indispensable in making treatment decisions for Multiple

Myeloma (#74)

Mirjam Garvelink

PhD

m.garvelink@antoniusziekenhuis.nl

@

MMGarvelink

Slide2

#EHMA2020

Mr. K has MM

@

MMGarvelink

Slide3

#EHMA2020

Shared

Decision

Making (SDM)

SDM

@

MMGarvelink

Slide4

Value

based

healthcare

(VBHC)

Expert

team

Collect &

compare

data

Implement

improvements

1

2

3

Analyse

differences

VBHC

improvement

cycle

Outcome

information

Quality

improvement

Slide5

VBHC

& SDM

Outcome

information

Expert

team

Collect &

compare

data

Implement

improvements

1

2

3

Analyse

differences

VBHC

improvement

cycle

Clinical

encounter

Quality

improvement

SDM

Slide6

#EHMA2020

Aim

To explore

communication

, information

exchange and

decision-making, and

how

this can be improved with (real world) outcome information.

@

MMGarvelink

Slide7

#EHMA2020

Methods

Data collection

Two focus groups with 11 patients

(91% male, 71 years old

)

and 10 caregivers

(89% partners)

Audio

taped, transcribed

verbatim

Topics discussed

Treatment

decision-making

C

ommunication & use of outcome information

Data analysis

D

ouble coded (open)

Thematically categorised

M

emberchecks

@

MMGarvelink

Slide8

#EHMA2020

Results

(1):

D

ecision-making

Few option awareness

Few involvement in DM (implicit)

Participants want to be involved but lack knowledge/confidence

T

rust in hematologist

@

MMGarvelink

Slide9

#EHMA2020

Results

(2):

Outcome

information

Good, reliable information from hematologist

Experience of hematologist (RW)

Scientific evidence

Goals of outcome information

Outcomes required

Prognosis, effectiveness & side effects meds, QOL, daily/social functioning

Changed during trajectory

Current

discussion

of

outcomes

: “

reactive

and

implicit

@

MMGarvelink

Slide10

#EHMA2020

Discussion

Why is the

presentation of outcome information indispensable in making treatment decisions for Multiple Myeloma? (title)

Current

decision

-making

processes

implicit

and

no

structured

OI

Outcomes

that

our

most important

for

patients

Fits with

participants information needs

and goalsMay brigde

knowlegde gap/confidence

Enables active participation

, opens up for

dicussion of values (

confidence, discussed info)

All

needed

for SDM

@

MMGarvelink

Slide11

#EHMA2020

Take home

message

Real

world outcome information as monitored in VBHC improvement cycles should be discussed with MM patients who are facing treatment decisions. Future research should look into how OI can best be communicated

@

MMGarvelink

Ref: Santeon Experiment

Outcome

Information

Slide12

#EHMA2020

Thank

you

Acknowlegdements

Participating

patients

and

caregivers

at St. Antonius

Hospital

, Nieuwegein

Co-

authors

: Kirsten Daniels, Okke de Weerdt, Paul van der Nat

Celgene

inc.

(

now

BMS)

@

MMGarvelink

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